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Breast Cancer: Stuff They Never Tell You

Survivors are part of a sisterhood, whether they choose to be or not. And sharing stories—funny, sad, ironic—is what sisters do best.

I was diagnosed with breast cancer in 2007.

Hearing the words, "I'm sorry, but it's cancer," comes as a shock to anyone, and I never thought I would hear them that day.

I was in my mid-40s, a marathon runner, healthy eater, non-smoker, no family history. The only real risk factor I had was giving birth to my first child after age 30.

I cried (hysterically), I went for a long run the next morning, I got a second opinion, I told only a handful of people and I went about my busy life trying not to think about it.

I made a list of other women I knew who had fought—or were fighting—this awful disease. In a few moments, I came up with more than 15 names of women in my community, most of whom were right around my age. Clearly, I was not alone. If I made that list today it would be at least twice as long.

As a journalist I have an ability to reach an audience greater than just my personal circle of friends. I thought then about how I could have an impact on this new "sisterhood," and those who would (unfortunately) join it in the future.

In the past five years I've helped publish numerous articles, written about my own experiences, promoted early detection, attended and written about mammogram parties, and have willingly been interviewed by several area TV stations.

When I interviewed Barbara Delinsky last year regarding the release of her 10th anniversary edition of "Uplift: Secrets from the Sisterhood of Breast Cancer Survivors," I realized that indeed I was part of that sisterhood.

There is so much more I could say—and write—about the experience of being diagnosed and treated. I could write about running the Race for the Cure just six weeks after my lumpectomy, or running the National Marathon to Fight Breast Cancer just 11 months after my diagnosis.

I could also talk about the things they never tell you: that the radioactive/blue dye cocktail that's injected as part of a sentinel node biopsy (performed along with a lumpectomy) turns your urine blue for the next day or two and sets off the security alarm going in and out of the drug store when you are just trying to pick up your painkillers.

Or, that getting radiation also involves getting a few tatoos. And getting marked up by Sharpies. If I had known, I would not have worn my brand new white shirt that day!

Most of what I'd like to say is if you hear those dreaded words – face it fighting. When you're diagnosed you have a disease. The best thing you can do is fight it, the best way you know how.

Talk about it if you can, and share your story. If you help just one person get an early diagnosis, you will have had an incredible impact on another's life.

Walk for the cure. Run for the cure. Support your friends and neighbors.

I ran home from the hospital after one of my radiation treatments. Just because my doctor said he never knew of anyone else doing that before, and because it was one of the ways I chose to face (spit in the face of) this disease.

A few weeks ago I modeled with other survivors in a fashion show that was part of a "Pink Party" fundraiser for Komen Connecticut. I'll have to say I was a little bit nervous about strutting across the stage in dangerously high heels and wiping out in front of a much larger crowd than I had expected.

"Who cares. This is our night. This is celebrating what we have all gone through," said one of the other models/survivors. She was right. Sharing that experience with those other women was so empowering.

I didn't want to join this sisterhood. But I am proud to call all of these women my "sisters."

SHARE: What is your story? What is something you experienced or learned about breast cancer that people don't normally talk about?



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Just a short thought to get the word out quickly about anything in your neighborhood.
Share something with your neighbors. Write a new post... What's up? Make an announcement, speak your mind, or sell something
Kris Robinson May 22, 2013 at 07:38 pm
Teachers who have specific projects that require funding can also put their projects up onRead More Donorschoose.org where anyone in the world can donate money to fund the project. This is a great way to get bigger-ticket wish-list type items (not for day to day supplies).
Tracy Plowman April 2, 2013 at 04:16 pm
Another great Grade K- 9 San Carlos camp is Learningtech.org, rich technology includes Science,Read More Technology, Math, Digital Arts and Engineering.
Holly Bell May 12, 2013 at 02:59 pm
If the city council likes fake plastic nature, then let them saran-wrap their own yards! LEAVE OURRead More PARKS ALONE!! This is soccer special interest pressure on city government at its worst, and the city council appears unwilling or unable to withstand it. Crestview Park is a particularly quiet, serene, simple park with lovely views which the council now wants to turn into a sports arena. Any day you can go there and see families playing on the grass, toddlers and moms enjoying picnics and play time, kids learning to ride their bikes on the nice flat paved area, athletes and older folks enjoying the flat natural track (the only one in San Carlos) to get in shape, teens throwing frisbees on the lawn. It is a perfect place for ALL residents to enjoy according to their needs, not a sports arena dedicated to one activity at the expense of all. Belmont faced a similar lack of sports venues, but they did not choose to pave paradise. They wisely raised money and built a sports complex and spared their beautiful parks for use by ALL residents. I would like to see our city council do the right thing also. And by the way, the opposition to this short-sighted plan is far more than "some residents"! Please visit our booth at Hometown Days.
Brenda May 9, 2013 at 04:10 am
One summer my kid had soccer camp on at an artificial turf field. It was terrible. It madeRead More everything hotter and very uncomfortable. I had to pull my kid out of camp early because of it. I do not think it is better for the environment OR for kids. Just go to any turf field and try to walk across it on a hot day. Try to go barefoot on it (good luck!) We have been told not to microwave plastic containers because of BPA and bad chemicals that can cause cancer. What about heating up plastic grass and running around on it, breathing the fumes that come off it?? How is that any different?
R. W. Dehner May 9, 2013 at 02:20 am
Artificial turf is appropriate for dedicated use sports venues, not for multi-use city parks.
Gordon cook April 15, 2013 at 11:30 am
Thanks for doing this. The one blatant thing I observe on a daily basis is the number and frequencyRead More of deputy's at Starbucks on 800 laurel street and the sky kitchen. I never see them in the neighborhoods. The police department was much better